Prader–Willi Syndrome is a rare genetic disorder in which seven genes (or some subset thereof) on chromosome 15 are deleted or unexpressed on the paternal chromosome, resulting in low muscle tone, short stature, incomplete sexual development, cognitive disabilities, problem behaviors, and a chronic feeling of hunger that can lead to excessive eating and life-threatening obesity.
This is Violet
For Violet, Prader-Willi Syndrome impacts everything from family and social relationships to education to her own self-image.
Featured Articles for Prader-Willi
Finding the right placement for your child with Prader-Willi Syndrome can be difficult. You may go through numerous homes before you find the one that is a fit for your child and that can help him or her in the best way possible. Read how one parent never gave up and sought out the help that she knew her child needed, in an environment that worked for him!
Last year, Chelsea McCutchin worked on an ORP Library book about Prader-Willi syndrome and was inspired by the beauty and the pain of those who suffer with this fascinating disorder. Here, Chelsea expresses what it feels like to be caught inside of PW through a poem called a sestina.